Eddie Ndopu is an award-winning, internationally acclaimed activist and humanitarian. Diagnosed with Spinal Muscular Atrophy at age two and given only five years to live, he has gone on to become a beacon of hope and possibility for people with disabilities around the world.



He currently serves as Special Advisor to RTW Investments, a leading investor in scientific and medical innovation. He has also advised organizations such as the World Economic Forum, UN Women and Amnesty International. A member of the first graduating class of the African Leadership Academy, Eddie holds a Master’s in Public Policy from Oxford University. He is currently setting in motion plans to deliver a televised address to the UN from Space, in an effort to inspire greater ambition around the SDGs. This will make him the first physically disabled person to travel into space.